Happy holidays blog friends! No matter where you are or what you celebrate this month, I hope you were able to enjoy some love and laughter with your family and friends.
Speaking of exciting celebrations, this was a pretty fantastic holiday gift...
http://www.sarahkayhoffman.com/2012/12/21/why-lydia-buschenfeldt-is-gutsy-never-giving-up/
In any event, following a lovely needle-filled week at the Mayo Clinic, I opted out of a second week of medical mania in favor of a lovely holiday spent with family. The semi-unfortunate part of that decision is that I do need to return to balmy Minnesota in January...but the ability to spend this holiday week with my family and friends has been just the pick-me-up that I needed. Let's be honest, I just didn't want to miss out on the holiday feast. Shockingly, not one relative asked to share my egg whites and sweet potato Christmas dinner...can you believe it?!
I had planned on writing a blog post today full of results and plans moving forward...but we aren't there yet, and that's ok. The most recent trip to Mayo was only a week, but was likely the busiest trip yet. Most days I arrived at the Clinic around 7:00 and left around 5:00, and nearly every hour was spent in appointments and tests. Exhausting? Absolutely, but also satisfying to know that my time there was well-spent and efficient. When I return in January, I will see neurology, allergy and internal medicine again, along with neuro-opthamology (Didn't know this existed? Fear not...you aren't alone).
In addition to the obvious remnants of the darling super-virus, my doctors are working on some theories about what else may be going on in my body that is halting the healing process (ya know, other than the obvious daily green juice and frozen yogurt dance party). There are theories of Graves' Ophthalmopathy, Myasthenia Gravis, Mast-Cell Disease and other such fantastic holiday gifts, but I will hold off on explanations(boring you to tears?) until things are confirmed/denied.
I think the GI nurses are most anxious about my upcoming return visit with neurology. When I showed up for my feeding tube change wearing only a hospital gown and fabulous candy corn socks, they all of a sudden started speaking to me like I was 2 and asking me questions about the date and what holiday was coming soon.
What? You don't celebrate the amazingness of candy corn 365 days a year? Weird.
Good luck with the next visit in January. Did you confirm that they will still have mint fro yo on tap for you?? xoxoxo
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